Investigating and supporting health management practices of individuals with diabetes

ABSTRACT

In recent years the development of technologies that support individuals in managing their health has become a vibrant, yet challenging, research area. Many of the challenges faced by researchers are a result of significant transformations in doctor and patient attitudes toward health and healthcare and their perception of their respective roles. Shifting the focus from the traditional goal of supporting clinicians in delivering quality care to empowering individuals' self-management requires certain transformations of design goals as well as design practices. In this paper we will discuss our own journey in designing, building, deploying and evaluating technologies that support individual health management. We reflect on two of our recent projects, a recently completed CHAP (Continuous Health Awareness Program) and our current research initiative, MAHI (Mobile Access to Health Information).

REFERENCES

• 1: Cancer Stat Fact Sheets, 2006, Surveillance Epidemiology and End Results (SEER).
• 2: Barab, S., and Squire, K., 2004, Design-Based Research: Putting a Stake in the Ground, Journal of the Learning Sciences
• 3: Bodenheimer, T., et al. 2002. "Patient self-management of chronic disease in primary care." JAMA 288(19): 2469--75.
• 4: Dourish, P., 2001, "Where the action is", Cambridge: MIT Press
• 5: Dourish, P., and Buttoon, G. 1998, On "Technomethodology": Foundational Relationships between Ethnomethodology and System Design. Human-Computer Interaction, 13(4), 395--432.
• 6: Fitton, D, Chevherst, K., Rouncefield, M., Dix, A. and Crabtree, A., 2004 Probing Technology with Technology Probes. Paper presented at the Equator Workshop on Record and Replay Technologies, February 12-13, London: Equator IRC.
• 7: Hastie, R., 2001, Problems for judgment and decision making. Ann Rev Pshychol 2001;52:653--83
• 8: Hutchinson, H., Mackay, W., Westerlund, B., Bederson, B. B., Druin, A., Plaisant, C., Beaudouin-Lafon, M., Conversy, S., Evans, H., Hansen, H., Roussel, N., and Eiderbäck, B. 2003. Technology probes: inspiring design for and with families. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (Ft. Lauderdale, Florida, USA, April 05-10, 2003). CHI '03, pp. 17--24.
• 9: Intille, S. S., "Ubiquitous Computing Technology for Just-in-Time Motivation of Behavior Change (Position Paper)," in Proceedings of the UbiHealth Workshop, 2003.
• 10: Knorr Cetina, K., 1999, Epistemic Cultures, Cambridge, MA: Harvard University Press
• 11: Mamykina, L., Mynatt E. D., Kaufman, D., Investigating Health Management Practices of Individuals with Diabetes, in Proceedings of the ACM SIGCHI conference on Human factors in computing systems, CHI'06, Montreal, Canada
• 12: Mihailidis, A. (2002, November 9-12). Intelligent supportive home environments for older adults with dementia: Current and future Research. Gerontechnology 2002. The International Society for Gerontechnology Conference, Miami Beach, FL, Gerontechnology (Congress Issue), 2 (1), 133.
• 13: Morris, M., Lundell, J., Dishman, E., Catalyzing social interaction with ubiquitous computing: a needs assessment of elders coping with cognitive decline. CHI Extended Abstracts 2004: 1151--1154
• 14: Munguia Tapia, E., Intille S. S., Larson, K., "Activity recognition in the home setting using simple and ubiquitous sensors," in Proceedings of PERVASIVE 2004, pp. 158--175
• 15: Mynatt, E. D., Rowan, J., Craighill, S., and Jacobs, A. 2001. Digital family portraits: supporting peace of mind for extended family members. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (Seattle, Washington, United States). CHI'01, pp. 333--340.
• 16: National Diabetes Association Facts and Figures Sheet, www.diabetes.org
• 17: Patel, V. L., Kaufman, D. R., Arocha, J. F., 2002, Emerging paradigms of cognition in medical decision-making, Journal of Biomedical Informatics, 35 (2002) 52--75
• 18: Shon, D. (1983) The Reflective Practitioner How Professionals Think in Action, Basic Books, Inc., Publishers, New York, 1983
• 19: Wagner, E., & Groves, T. (2002). Care for chronic diseases. British Medical Journal; 325: 913--914.
• 20: Weick, K. E., Sutcliffe, K. M., (2005) Organizing and the process of Sensemaking, Organizational Science, Vol. 16, No. 4, July-August 2005, pp. 409--421
• 21: http://www.lifescan.com/products/meters/ultra/
• 22: http://www.nokiausa.com/phones/N80
• 23: http://www.brainboxes.com/product/bluetooth/BL-819.aspx

INDEX TERMS

Primary Classification:
  H. Information Systems
  H.5 INFORMATION INTERFACES AND PRESENTATION (I.7)
      H.5.2 User Interfaces (D.2.2, H.1.2, I.3.6)
          Subjects: Evaluation/methodology

Additional Classification:
  H. Information Systems
  H.5 INFORMATION INTERFACES AND PRESENTATION (I.7)
      H.5.2 User Interfaces (D.2.2, H.1.2, I.3.6)
          Subjects: User-centered design

General Terms:
Design, Human Factors

Keywords:
chronic disease management, decision-making, deployment studies, sense-making, ubiquitous computing